Tuesday, December 23, 2008

Renaming and other ramblings

By the way, in case you are wondering at the new blog heading, I grew tired of "life beyond the hill"... i mean, this still is life beyond the hill, but one year onwards, i felt like it should be more than jsut that! This afternoon, i started reading Neruda's memoir, and this line on the first page jumped out at me. Yes, I thought, this is why I blog even amongst the maddest of times at work and oherwise. It's also why i daydream, which i do A LOT (sometimes, i think i do it too much). But he's right, these intervals of dreaming help me stand up and keep goign when the work is hard (and by work here i don't jsut mean office, i mean a lot of things that are just hard work). This blog is those "intervals of dreaming" so that seemed like the right name.

The rest of what I would write about today is a dilemma i face every time i write for a public space: what is appropriate to share? Usually, I would limit a blog space to external stuff... in my mind, the blog and the diary have very different spaces. But, as I mentioned some posts ago, i increasingly find this blog going personal because there are lot of external things i cannot comment on without going inwards. And I am ok with that, generally speaking.

But today i have spent a lot of time online reading people's writing on different fora, discussion groups, and blogs. Basically, I have been trying to research patients' perspectives on some new treatment my doctor wants to put me through, because i am not yet convinced she knows what she is doing (if you don't know me and my medical history that well, you'll wonder at this attitude of mine. But i have seen way too many doctors mess up and mess me up as a result... so now i double and triple check every treatment and medication through support groups for the two major diseases i have. And say what you like, patients know WAY more than doctors do!). Anyhow, as i read all this stuff out there, i was incredibly grateful to the people who put that information out there, a lot of it very personal. I was looking at the blog of one particular woman who seems to have started that blog solely to document the effects of a particular treatment she was undergoing for that disease... it's updated regularly after every session of her treatment, and it even has photos. On one hand, i was so grateful because she had the exact information (and lots of very valuable advice) that i had been looking for. On the other hand, I felt a little squeamish... I don't think i would ever put such a detailed and personal report of my illness up on a blog. I don't know why, it just seems inappropriate. Maybe it depends on the particular blog and who your audience is... i know that most of that info is meaningless to all of you who read this blog, but maybe i would be more comfortable putting it up on a support group where i know my readers are interested in knowing how things are and what will help (come to think of it, i think i did post something like that on the support group once-- Chris, you might remember. But later I was so embarrassed and really, really wished i hadn't. Especially not if nayone i knew was going to read it). Why? Don't know. Maybe there's still some shame associated with the disease, maybe i, just I, struggle with the private-public line, maybe i should stop wondering and go do something more productive with my time.

OK, me likes that last idea. Good night!

Happy Birthday Blog

How time flies! I first posted here on December 16 2007, and i can't believe it's been one year and one week since then. Then again, when i read those entries, it feels like it was written in another lifetime...

I found one post there, which i wrote on the airplane home from California, listing things I thought i would miss about SUA life. Now, i feel like revisiting that a year later. Here's the original list with comments:

The neighborhood cup-- YES! I miss that place!
Walking to town center- Well, not the walk but the company (Masako, call me!)
dark chocolate- nah, you get decent dark chocolate in India now!
being mistaken for mexican- YES
running hot water 24/ 7- Surprisingly, no. I guess I re-accustomed pretty fast to life here.
brewed coffee- Nope, manage that at home now
being able to eat sushi and pancakes in the same meal-- YES! And Sushi in general. And pancakes in general.
California sunrises and sunsets- YES!
Midnight conversations- Oh, so much!
Signboards in Spanish- Not really. Maybe when i think about it, but not every day.
feeling safe walking alone at night- YES. It;s a good thing I have nowhere to go in the evenings these days, because i have no idea how i would get there. This is a big one.
Being able to laugh at my professors- Oh, I still manage that long distance! yay facebook!
Peace Lake- I miss Peace Lake!
moments of cultural-outsiderness- No, because after all that globetrotting i am still as much of a cultural outsider here in Delhi as I was there in other countries.
hugs- yeah, sometimes... because hugging isn't nearly common enough in india and because most of my friends are no longer within huggable distance.
all the people who come to the writing center for a "candy fix"- Hehe, only when i think about it!
watching people get high on too much work- yeah. At office, overworked people seem to get stressed and cranky. But I do miss the noise and madness of the cafeteria right around exam time...
clean public restrooms- ALWAYS!

Huh, interesting... I wasn't so far off the mark, was I? :)

Saturday, December 20, 2008

Writer's Block

This blog entry is simply an attempt to break through Writer's Block, as i sit staring at an empty word document an hour before bedtime, longing to have at least one draft of this essay done tonight. Once the ball gets rolling, i know i can get a draft down in half an hour... but right now, the ball isn't rolling.

I'm trying to write an autobiography. One of my grad school aps and one fellowship application want me to write an autobiography. Of up to a 1000 words. Sum up my life in a 1000 words. And I don't even know where to begin.

In some ways, all personal statements have stumped me in this way... even jsut the idea of summing up all your academic interests, your interest in this program or that school, your dreams for the future, your work expereince... and then trying to make that essay seem interesting (applying to writing programs, the essay better be interesting!) is a lot of work. But at least, there you have your broad area of focus delimited for you. In this case, this "autobiography" is in addition to that kind of personal statement AND another statement about why I want to go to that particular school (yes, 3 essays for one school). At first, I really liked that because, after playing mindgames trying to sum everything up in 300 words for another school, I felt liberated by the amount of space. More than that, I felt that here, finally, was a graduate program that actually wanted to get to know me, not jsut my work but me. I still feel that, which is a large part of why i want to take this autobiography thing seriously. And yet, and yet, where does one begin?

In some ways, writing is always this process of overcoming self-doubt, isn't it? For a couple of weeks I was struggling with an essay for the internal newsleter at work, sure I was making no progress whatsoever, sure I could never get it done. And then one evening i forced myself to sit down at the computer because it was due the next day (had been due the previous day actually!)... and I got it down in an hour. I'm still amazed at the way that happens, even though I have expereinced it hundreds of times. Just sitting down, trusting the process that even when it seems like i have nothing meaningful to say i just need to keep saying it and suddenly it will all fall together (ok, the first couple paras will probably get thrown out at that point). And yet, every time, i wonder where to begin.

I jsut answered my own question, didn't I? Stop wondering what to write, just write. And trust the process. Oh, when will I learn to take my own advice?

Autobiography time now!

Thursday, December 11, 2008

Kids and Disability

Today was a whole day's work and involved lots of screaming over the voices of noisy students, which might be why i feel really tired just now. But there's something from today that has set me thinking... and feeling. This was going to be a diary entry, but then it felt like the kind of diary entry i might want others to read, so here it is. (as time passes, i'm letting this blog get more and more personal!).

This evening, I had a meeting with someone who works in an inclusive school (disabled and non-disabled kids). The point of the meeting was to discuss possible ways of working together, doing workshops with kids there, having them work with our teachers on inclusive classrooms, etc. It was a great meeting in many ways- the people we met were lovely, and so many possibilities emerged that i really felt it could open a new chapter of my journey as a would-be educator. And yet, I returned feeling slightly disconcerted, not feeling quite at ease, feeling like something in the evening was bothering me. this blog post is an attempt to examine that feeling.

At one point, while talking about teacher sensitization to disability issues, i shared my concern that we sometimes focus exclusively on students with visible and obvious disabilities, forgetting that the word covers a whole range that we cannot ignore... yes, there is the blind student but there is also the severely visually impaired student... in the first case, the teacher certainly knows about it and probably won't be too insensitive (provided he/ she is a decent human being), but in the latter he/she is more likely to be hurtful. I shared an example of a teacher who once scolded me bitterly for walking up to the board to read what she had written and how I internalized guilt for not being able to read from my seat-- like there was something bad about me if I couldn't do that. I know, it may sound like a small thing to you-- i know it did to them-- but think about it. I was 10 then; I'm 23 now, but I still remember the scolding and the bitter shame I felt afterwards. It obviously left a strong impression and, in retrospect, I believe it really affected my perception of my own illness. Even today, I am embarrassed to ask for help reading something at a distance or requesting a "favor" like larger print copies.

Another example: In 5th grade, I used to hide the pink chalk. I am partially green-pink blind, and pink chalk against green boards used to make classrooms impossible for me. So, once I was thought of as "responsible" and given duties like making sure there was enough chalk near the board, I used to hide pink chalk at the back of the box and keep putting out other colors. Then, when I knew we were running out and only pink chalk remained, I used dread the coming weeks. Looking back, I can't believe I didn't simply tell my teacher that pink against green didn't work for me and request her to use different colors; I highly doubt she would have told me to deal with it and continued using pink. But somehow, the fear, the sense of shame, took over, and I pulled myself through those dreaded "all pink" weeks.

Once, in 7th grade, I couldn't copy down all the Math HW questions from the board, and I was sick of always losing marks over "copied wrong" questions (even if they were solved right, the teacher would give you no marks if you had copied a question wrong from the board). So I called the girl I then thought of as my "best friend" and asked her to give me the questions over the phone. Her mother took the phone from her and screamed at me, telling me not to take away her daughter's precious study time, and telling me that if I didn't copy the questions down on my own, it was my problem and no one else's responsibility. The woman had known me through 4 years and 3-4 surgeries, so it's not like she could pleade ignorance of my eye condition. But there she was, telling me, just as my 5th grade teacher had, that this was all my fault. And, once again, I believed her. I remember crying after I hung up, and I never called this friend for help again.

Over the years, many "larger" issues emerged. I had to study through audio tapes. I needed to take frequent long breaks from school for one surgery after another. On many days, my teachers had to accept that i was still listening to them even though I would keep my head down for the entire period because my eyes hurt. I had to give board exams with a scribe, which was complicated because i was giving exams in the "blind student" category although I wasn't blind (the exams have been broken up into "seeing" and "blind" categories-- the first are the normal exams; the second are the ones that someone else writes for you. No one seems ever to have thought of a "large print" category). In college, I had to make my own large print copies of texts, had to convince professors to give me extensions on papers when i suddenly took unwell, had to even write exams with my left hand when my glandular problem got really bad. Lots of big and small things like that came along in the way to my education.

Strangely, though, none of the supposedly larger issues left as strong an impression as those 5th grade scoldings. They hurt, they were struggles, but the emotion with which i now look back is triumph, is pride, is the sense that I proved stronger than the obstacles. Those long ago scoldings, though, still inspire an inexplicable sense of shame and, yes, even fear.

Of course, that's partly because as i grew older, I learned to deal with all these emotions, learned to talk to my teachers about my struggles. I was lucky to have some incredible teacher sin high school; not only did these women understand and support me completely, they also voiced their admiration for my efforts and went out of their way to help me succeed, recording books on audio cassettes for me, giving me photocopied notes when I couldn't take notes in class, exempting me from mapwork...thanks to them I completed school with good grades and with a strong sense of self. I owe them a lot.

But yeah, coming back to today's conversation, all these reflections really forced me to go back to the important role a teacher can play- incredible damage and incredible healing. They reaffirm to me why it is so important for teachers to be aware of, and sensitive to, the needs of their individual students. Also the need to involve the parents in the process-- i don't know if I ever told my Mom about those scoldings; I'm sure she would have taken it up in school if I had, but maybe the 9 or 10 year old me was too scared/ ashamed to do so. Not every disability is immediatley obvious, but over months of working with a child, reading their letters of absence, observing them in class, one should be able to tell if something is amiss. At the very least, we need to equip kids with the skills and the courage to articulate such fears, worries, and insecurities.

"How" is question number two. This blog post is still at "Why," written from a very personal space.

Monday, December 8, 2008

So, here I am after another disappearance. I am guessing there's no need for long explanations-- most of you know that i had an eye surgery about ten days ago, so i was out of action for a while. Back again, little by little now.

After surgery, i slept straight for 4-5 days, really, i have no track of time, of when i awoke, when someone called, nothing... those 5 days are a complete blur. Just as well, because i wasn't awake long enough to be in too much pain! The next five days were more interesting (OK, that depends on what you consider interesting!) because i was awake but unable to do much except lie around in a dark room, periodically popping pain meds. No, that's not my idea of fun either before you ask, but it was interesting because it became a sort of forced reflection time... time to think about so many things that i would never otherwise bother with. As a result, this is likely to be a very disjointed blog entry, with random little bits of thoughts from the last few days.

First, I felt like Rip Van Winkle when I awoke... the world changed so much while I was sleeping! The Mumbai attacks were still underway when i went into surgery... it had already been a nightmarish couple of days in front of the television, with scenes that looked more like war than terrorist attacks (a bomb blast is one thing; 50 hours of sustained gunfire and grenade attacks is another). Anyway, that's how things were when I went to bed after my surgery. When I awoke, i could only hear war-mongering. So-called solidarity marches one week after the attack descended into little more than cries to go to war against Pakistan. I lay around in bed, feeling helpless but amazed at the sheer stupidity of even thinking about another war between two openly nuclear states... over and above the madness of thinking that such a war would end terrorism anyway. Then I heard people hailing Guantonomo Bay and the Iraq War as models of how to fight terrorism, pointing out that the USA had never suffered another attack post 9-11. Gosh, i don't even know where to begin answering that question... having lived in a college campus in the USA for a few years, i had naively begun to believe that everyone acknowledged the erros of Iraq... clearl, i was wrong. And the two situations-- America's and India's-- are so different in so many ways that any comparison, either in terms of situation or possible responses-- feels totally futile. Really, what is common between the way 9/11 happened and the way the Bombay attacks took place, except for the fact that we have placed both under an arbitrary category of terrorist acts?

Speaking of which, I had an interesting conversation with some of my students about what constitutes terrorism anyway. Significantly, none of them talked about the actual loss of life as much as they talked about violence specifically aimed at creating a sense of fear and hatred, creating panis and insecurity, in the minds of people far beyond those directly affected by the violence. When asked why, then, we call these acts "terrorism" but don't use that word for Hindus raping and murdering Christians in Orissa, they shrugged, then finally said "I guess it's because we are hypocrites." Yes, I guess so.

Except, where does that leave us? Now we have not one but mulitple perpetrators of terrorist activity in the country. How do we respond, and where do we turn? The answers are unlikely to be easy and will definitely not be immediate, so let's leave the questions open for now. Perhaps the quest to answer them will itself prove to be the answer.

And, while all these events were disturbing the wrold and the country, i lay in bed, almost unaffected... that felt strange, felt WRONG, but there it was. Ot affected me all emotionally, yes, but still it felt wrong to be able to go on with life as usual in the midst of all that. Besides, life was not usual... i was recovering from surgery and had other stuff to worry about, stuff that seemed petty in comparison and yet stuff that was hugely important.

One of which was love. Amidst all the hatred and cynicisim that, I think, was eating at all our hearts, i was receiving message after message of love an friendship from all over the world. Expressions of solidarity with people in India. Expressions of concern from classmates who weren't sure which part of India I live in. And then of course, expressions of live and support in light of the health crisis in my personal little corner of the world. When I finally did get to my email and facebook after a week's post-op break, I found beautiful messages from some 25-30 friends, all in different parts of the world, literally messages from all 6 inhabited continents. It was one of those moments when you see so much hatred amongst peoples and cultures, thn see so much love amongst other peoples and cultures, and choose which you will believe in. I choose to believe in love, perhaps it is a desperate hope rather than a belief, but i must believe in it.

I'll close this entry here now, but in truth it hasnt even begun to detail all of this week's reflections. More soon, I hope.